Does your child have Lupus? Does one of your students have Lupus? Does a child in your family have lupus?
When we talk about Lupus we tend to think of adults, but there are children battling Lupus as well! I have to be honest, the thought of one of my students having Lupus has never really crossed my mind. I have not encountered in my career yet, but the possibility is there. As many of know battling Lupus is not easy, and I can not imagine a young child having to go though it. Here are some helpful hints from the Lupus Foundation of America for caring for a child with lupus.
This is a pretty cool survey that Christine Miserandino posted on her page! I love it! I think it gives us some insight into her journey! It would be cool to see all of your answers! Feel free to post them in the comments!
A lot of people may not understand what you are going through or the battles that you face on daily basis. This maybe something fun that you post to your social media accounts along with your answers! It will bring awareness to your disease and inform friends and family about your battle!
Also, if you have not checked out Cristine Miserandino's Spoon Theory, YOU NEED TO! I believe she accurately describes what spoonies face every single day! My mom and I love it so much, we have a framed poster in our house!
Hope you enjoy it as much as we do!
This is a pretty cool video that the Lupus Foundation of America put together for Lupus Awareness Month. It's complied some our favorite celebrities showing their support in the fight against Lupus!
I love seeing people from all walks of life showing support in the fight against Lupus!
We need to Know Lupus!
There is also a fun little Lupus trivia game found here! I had fun, but surprised at some of the facts I didn't know!
Hope you enjoy it!
Often times Lupus patients feel like they are alone and that nobody understands what they are going through. Just know that you are not alone! There is a huge community of support out there for you! The Lupus Foundation of America offers monthly support groups in many different areas! Click here for a list of meetings!
I have to say that one of my favorite things that the Lupus Foundation of America offers is a A Telephonic Support Group!
You have the opportunity to take part in the meeting from the comfort of your own home! I mean come on, how awesome?! This is very important, because we all know that some days, leaving the house just isn't happening! Way to go Lupus Foundation of America! You guys rock!
The information for the Telephonic Support group can be found below!
Meeting Available via a toll-free telephone conference call
2nd Thursday of every month, 7:30-8:30pm
You can register for the call by clicking here.
You may also want to look on their website for additional information!
There are so many vaccines out there that some times it's hard to know what you should and shouldn't get. One of the most important things about being a Lupus patient is that you need to be your own advocate! Don't be afraid to ask your doctors their opinion and even get a second opinion! Don't forget....no one knows your body like you do!
Here's an article that Christin Miserandino shared that provides some insight in vaccines and Lupus patients!