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I don't know about you, but I feel that everyone's opinions on this topic are mixed. I have had my mom's rheumatologist tell me that I am not at any risk of having Lupus just because my mom has it. However, I feel that many times I hear about multiple family members having the disease.
While I have not been given a diagnosis of Lupus, like my mom, I have many of the symptoms. I have a positive ANA test and regular blood tests and check ups! So what do you think? Do you feel there is a link between Lupus and your genes? Here's what the Lupus Foundation of America has to say! -Jess
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On Tuesday, July 14th at 7 PM the Lupus Foundation of America, Philadelphia Tri-State Chapter will host a teleconference series on Lupus and the skin! Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Join us to hear Dr. Santoro discuss how lupus can affect your skin and effective treatment options.
For more information or the register click here! -Jess The Lupus Foundation of America Connecticut Chapter has scheduled their annual board meeting for July 7th at Wethersfield Library, from 6 to 8 p.m. This open-to-the-public event is the perfect opportunity for supporters, lupus patients, and volunteers to ask questions and learn more about everything that has occurred and is continuously occurring within the Connecticut Chapter. There is no cost! If you're local to the area, I hope you get a chance to check it out! Let us know how it went!
For additional information on the event, click here. -Jess We all know that dealing with Lupus is no easy task! But what happens when you have Lupus and you still want to be the best parent you can be? Well it's not easy, but you can do anything when you put your mind to it! The Lupus Foundation of America has published a list of 15 questions and answers about parenting and Lupus!
Check it out here! -Jess Tis' the season for allergies to kick our butts. If you are anything like me, going a day with out my allergies meds is unthinkable! I rely on them so much! But Lupus patients need to be so very careful when taking medications that are prescribed. I know that my mom consults with a team of doctors before starting anything new. The Lupus Foundation of America is giving us some insight to allergy medications and Lupus patients! Check out what they have to say!
What allergy medicines do you find work best for you? -Jess Have you or someone you know made a Lupus comfort kit?! It's such a cute idea to make for someone who may be experiencing a flare and needs a little pick me up! Check out these awesome kits here!
I think I may send some of these out to some lupies soon! What would you put in your comfort kit? -Jess It is so important to stay active and healthy as a Lupus Patient! But what are you suppose to do when your meds make you feel like junk or you just don't have it in you to workout today?
The Lupus Foundation of America published 15 questions that Dr. Hazel Breland answered about exercising with Lupus. I found them to be so informative! Hope you do too!! -Jess It is not always easy getting a Lupus diagnosis! This disease is very unpredictable and presents itself in many different ways. It can take up to several years to figure out what is going on with your body! In this article the Lupus Foundation of America posted it took Lisa Walters 8 years to find out she had Lupus! After her diagnosis she felt a little sense of relief. While finding you have Lupus isn't great news, but finally getting an answer is wonderful news!
It took awhile for my mom to get a diagnosis as well. Have any of you felt this way? -Jess I am super excited about this!!! The Lupus Foundation of America’s National Lupus Advocacy Summit will be held on Tuesday, June 16th. The Advocacy Summit provides lupus activists from across the nation the opportunity to meet with their members of Congress in Washington, DC and to educate policy makers about lupus and public policies impacting people with lupus.
Let's face it, there's not a lot of funding for Lupus research out there. There are so many treatments in the works, but they need additional funding to finish testing and get these treatments on the market! It's time we stand up to Congress and get them on board with spreading Lupus awareness! For additional information on the Summit click here. -Jess Does your child have Lupus? Does one of your students have Lupus? Does a child in your family have lupus?
When we talk about Lupus we tend to think of adults, but there are children battling Lupus as well! I have to be honest, the thought of one of my students having Lupus has never really crossed my mind. I have not encountered in my career yet, but the possibility is there. As many of know battling Lupus is not easy, and I can not imagine a young child having to go though it. Here are some helpful hints from the Lupus Foundation of America for caring for a child with lupus. -Jess |
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