Did you that the Hospital for Special Surgery offers Teen and Parent Lupus Chat Groups?!
Teen and Parent Lupus Chat Groups is a monthly in-person chat group for teens (14 to 18) who have lupus and their parents. Parents of teens with lupus meet separately at the same time. The groups offer informal discussion, support, sharing of experiences, guest speakers, group activities, and celebrations. Close friends and family members are welcome.Both groups meet the third Thursday of each month from 6pm to 8pm at alternating hospital sites in New York City.
For more information click here!
Do you take Plaquenil to treat your Lupus symptoms? It seems to be the go to drug with a great deal of Lupus patients! I know this is what my mom takes daily. I also know that a close family friend was taking Plaquenil to treat her Lupus symptoms as well, however she needed to stop taking it because she was loosing her vision.
My mom goes for eye test regularly, and to date, her vision has remained the same!
It is so IMPORTANT to follow up with your ophthalmologist regularly!
Molly's Fund has posted an article packed full of information for those taking Plaquenil! Check it out here!
I don't know about you, but I feel that everyone's opinions on this topic are mixed. I have had my mom's rheumatologist tell me that I am not at any risk of having Lupus just because my mom has it. However, I feel that many times I hear about multiple family members having the disease.
While I have not been given a diagnosis of Lupus, like my mom, I have many of the symptoms. I have a positive ANA test and regular blood tests and check ups!
So what do you think? Do you feel there is a link between Lupus and your genes?
Here's what the Lupus Foundation of America has to say!
I truly love stories with happy endings! When I came across the article on the Lupus Foundation of America's Page, I knew I had to share it! There is so much evil in this world, and at times I feel that it's all we hear about, but once and a great while I stumble across a story that really warms my heart.
Check out what Gold Medalist Gabby Douglas did here!
Hope you loved it as much as I did!
On Tuesday, July 14th at 7 PM the Lupus Foundation of America, Philadelphia Tri-State Chapter will host a teleconference series on Lupus and the skin! Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Join us to hear Dr. Santoro discuss how lupus can affect your skin and effective treatment options.
For more information or the register click here!
Join our team on Oct. 17th in NYC as we walk in the fight against Lupus!
I have been to NYC a handful of times in the past to walk for Lupus, and I have to say, they are some of the best experiences of life! I've met so of the most amazing people! It's truly the best feeling in the world to join everyone and fight for something we are all passionate about!
Join our team here!!
Hope to see you there!
As a Lupus patient, do you suffer from low vitamin D levels? My mom and I have both had to prescriptions because of low vitamin D levels. I can't help but wonder if there is a correlation between Lupus and Vitamin D levels. Molly's Fund published and article discussing the correlation between the two.
What do you think?
I feel as though Medical marijuana is a touchy topic...you are either for or against it. Typically when I hear about the use of medical marijuana I think of cancer patients. So, when I came across this article where Dr. Sean Breen discuses the use of medical marijuana in Lupus patients I was intrigued. Check the article out here!
What are your thoughts?
I came across this article and immediately fell in love with this idea! This woman, Elyse Hammett, made a Lupus Box where she would keep inspirational items and turn to her box when she was feeling down and needed a little pick me up! This story really inspired me! I want to make Lupus boxes and send them so some of my favorite spoonies! I think I just might! Check out Elyse Hammett's story here!
Hope you love it!
The Lupus Foundation of America Connecticut Chapter has scheduled their annual board meeting for July 7th at Wethersfield Library, from 6 to 8 p.m. This open-to-the-public event is the perfect opportunity for supporters, lupus patients, and volunteers to ask questions and learn more about everything that has occurred and is continuously occurring within the Connecticut Chapter. There is no cost! If you're local to the area, I hope you get a chance to check it out! Let us know how it went!
For additional information on the event, click here.